Entertainment Book
Part of our fundraising efforts come in the shape of the very exciting Entertainment Book each year.
This book contains endless discount coupons from brands such as Hoyts, Grill’d, Dan Murphy’s, Coles, Woolworths, travel partners, and so much more!!
Fragile X Alliance Membership
It is that time of year again, where we ask you to renew your annual membership to the Fragile X Alliance (FXA) Inc.
A small expense goes a long way to helping us provide medical and educational support to the fragile X community.
Fragile X Carrier Screening Study
Informed decision making and psychosocial outcomes in pregnant and nonpregnant women offered population fragile X carrier screening
The results of this study, conducted by scientists at the Murdoch Children’s Research Institute and the University of Melbourne, are now published. Here are the findings:…
New Fragile X Clinical Trial in Australia
Trial Now Over A clinical trial of a skin gel, for the treatment of symptoms of Fragile X syndrome, in Australia, for people aged 8-17 years old. Save Save Save Save Save Save Save Save Save
Informed decision making and psychosocial outcomes in pregnant and nonpregnant women offered population fragile X carrier screening
By Murdoch Children’s Research Institute and the University of Melbourne This study involved non-pregnant women, and women up to 13 weeks pregnant, recruited from obstetric and GP clinics. The finding was that population screening causes minimal psychosocial harms, when accompanied by appropriate information and prescreening genetic counseling. You can see the results in Genetics in Medicine, […]
2017 Membership
Hello Everybody, It is that time of year again, where we ask you to renew your annual membership to the Fragile X Alliance (FXA) Inc. A small expense ($44) goes a long way to helping us provide medical and educational support to the fragile X community. Please see our Membership Page for details on how to join or […]
Invitation from FXS Alliance to take part in a research project
This Research Project is now completed News about the next research project is coming soon
It’s Something I Need to Consider
‘‘It’s Something I Need to Consider” Decisions About Carrier Screening for Fragile X Syndrome in a Population of Non-Pregnant Women”
Archibald AD, Jaques AM, Wake S, Collins VR, Cohen J, Metcalfe SA. 2009 – Am J Med Genet Part A 149A:2731–2738
New clinic preparation structure
Dear all, I hope everyone is doing well. In light of recent reviews of our clinic operation, we have made a few changes to our clinic preparation. Please note the following changes: – instead of booking clinics prior to other requirements, we will now be requiring patients to complete all preclinic steps (including appointments and […]
Richies Community Benefits
Ritchies has generously added our organisation to their list of donation recipients. All you need to do is nominate our organisation and when you shop at any Ritchies store, a percentage of the profit goes to us to continue our work in supporting and educating families with Fragile X Syndrome. More details on the Ritchies […]