Links

Australia

• Fragile X Association of Australia
  A non-profit organization made up of family, friends, therapists, doctors and carers of people with Fragile X Syndrome.
  Website , Facebook Page, Facebook Group
  Address: Suite 204, 20 Dale Street, Brookvale NSW 2100
  Tel: 1300 394 636 or 02 9907 2366
  Email
• Information and Resources by The Association of Children with a Disability
• NDIS (National Disability Insurance Scheme)
• Carer Gateway – information and support for carers Australia wide and locally.
• The Human Genetics Society of Australasia
• The Murdoch Children’s Research Institute
• Centre for Developmental Disability Health, Victoria (CDDHV)
• Genetic Clinics Australia

International Support and Research Networks

• National Fragile X Foundation  (NFXF) – The peak US support and research organization
• FRAXA – The primary dedicated Fragile X  research organization in USA
• Fragile X Listserve – an email  support and information exchange group  for everyone: parents, siblings, grandparents, other family members, educators, and friends. Run by FRAXA
• UK Fragile X Society – provides support and information to fragile X families, promotes Fragile X awareness and encourages research.
• Fragile X Trust (NZ) – provides support and raises awareness in New Zealand