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Fragile X Carrier Screening Study

Study: Informed decision making and psychosocial outcomes in pregnant and nonpregnant women offered population fragile X carrier screening The results of this study, conducted by scientists at the Murdoch Children’s Research Institute and the University of Melbourne,... Read more

Fragile X Alliance Membership 2018

Hello Everybody, It is that time of year again, where we ask you to renew your annual membership to the Fragile X Alliance (FXA) Inc. A small expense ($44) goes a long way to helping us provide medical and educational support to the fragile  X community. Please see... Read more

Entertainment Book 2017-2018

As some of you may be aware, part of our fundraising efforts come in the shape of the very exciting Entertainment Book each year. This book contains endless discount coupons from brands such as Hoyts, Grill’d, Dan Murphy’s, Coles, Woolworths, travel... Read more

It’s Something I Need to Consider

‘‘It’s Something I Need to Consider” Decisions About Carrier Screening for Fragile X Syndrome in a Population of Non-Pregnant Women – Archibald AD, Jaques AM, Wake S, Collins VR, Cohen J, Metcalfe SA. 2009 – Am J Med Genet Part A 149A:2731–2738 Download – PDF... Read more

New clinic preparation structure

Dear all, I hope everyone is doing well. In light of recent reviews of our clinic operation, we have made a few changes to our clinic preparation. Please note the following changes: – instead of booking clinics prior to other requirements, we will now be... Read more